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On 13 December 2022 we published a report of the estimated prevalence of 28 specific neurological conditions: Neurological Conditions: estimating the prevalence in Scotland of selected conditions using GP and Hospital Admissions datasets - gov.scot (www.gov.scot) .

The work was initiated by the Scottish Government and supported by Public Health Scotland (PHS). Estimates were derived from GP recorded diagnoses and hospital admissions data.

The report addresses the commitment in the Neurological Care and Support: Framework for Action 2020-2025 to develop more accurate epidemiological data.

Undertaking this work has enabled us to begin looking at how neurological diagnoses are recorded in health and care records, and how we gather and report prevalence.

In 2019, we published a Neurological Care and Support – a National Framework for Action 2020-25 , with a vision to ensure everyone with a neurological condition can access the care and support they need to live well, on their own terms.

The aims include improving the provision of co-ordinated health and social care and support, developing sustainable workforce models and ensuring high standards of person-centred care.

Despite the disruption to health and social care services during the pandemic, we have sustained our efforts to deliver the 17 commitments of the Framework. Since October 2020 we have we have awarded £2.1 million to fund innovative projects by NHS Boards, Health and Social Care Partnerships and third sector organisations working to achieve better outcomes for people living with neurological conditions.

I further refer the member to the Neurological Care And Support: A Framework For Action 2020-2025 – Midpoint Progress Report , which was published on 13 July 2022. This report provides an update on the progress under each of the five aims in the Neurological Care And Support: A Framework For Action 2020-2025.

The Scottish Health Research Register and Biobank (SHARE) is funded by the Chief Scientist Office. SHARE has been established to create a register of people aged 11 and over and resident in Scotland who are interested in participating in health research studies, including trials in neurological conditions: https://www.registerforshare.org .

The NHS Research Scotland Neuroprogressive and Dementia Research Network is funded by the Scottish Government to deliver cutting edge clinical research in Neuroprogressive conditions and Dementia across Scotland. For example, the network has been key to the delivery in Scotland of the UK-wide MND SMART Trial, with over 200 of the 400 total trial participants as of October 2022 enrolled in Scottish centres https://www.mnd-smart.org.

I refer the member to the answer to question S6W-13700 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

Scottish Ministers are already able to access advice and analysis which allows for the triangulation of workforce intelligence at national level. They are fully supported in this by other agencies and organisations, including NHS Scotland health boards and NHS Education for Scotland, which publishes quarterly official workforce statistics and provides associated analysis on the NHS Scotland workforce.

The Scottish Government also continues to work closely with NHS Boards and Health and Social Care Partnerships to improve workforce planning, including the data and intelligence required to carry this out effectively at a local level.

The Scottish Government has established a Workforce Data Information and Intelligence Improvement Programme to support further improvement in data collation and evidence triangulation. This programme is focused specifically on improving the quality and granularity of existing data sets, alongside considering the requirements for gathering new or different data to support better decision making, workforce and service planning.

‘A Fairer Scotland for All: An Anti-Racist Employment Strategy was published on 9 December 2022 and sets out the actions the Scottish Government will take and how it will work with employers to help make Scotland’s workplaces more diverse, fair and inclusive.

The strategy will support NHS and other employers to:

• improve their collection of workforce data, including reporting their pay gap, and take action on the findings
• take an anti-racist approach to remove barriers in their recruitment, retention and progression practices to improve representation of workers
• drive cultural, attitudinal and organisational change through building an understanding of the impact of institutional racism and the processes and practices in an organisation that lead to the unfair treatment of people on the basis of race.’

In March 2022 the Scottish Government published The National Workforce Strategy for Health and Social Care in Scotland. This Strategy sets out a framework to shape our health and social care which includes Allied Health Professionals and Healthcare Scientists, over the next decade, placing training, wellbeing, job satisfaction and Fair Work at its heart. As part of the Strategy’s work, the Scottish Government has undertaken an AHP Workforce and Education Policy Review and a Healthcare Science Baseline Education Review.

I refer the member to the Scottish Government’s second Tackling Child Poverty Delivery Plan which committed to offering up to 500 apprenticeship opportunities across NHS Scotland in 2022/23.

NHS Boards deliver a wide range of employability programmes, following the ‘No One Left Behind’ overarching approach which is place-based, needs-led and person-centred. Programmes delivered in 2022-23 have focused on a wide range of groups, including: young people at risk of long-term unemployment, care leavers, veterans and service leavers, and lone parents over the age of 25.

Climate change will increase both the intensity and frequency of storms, flooding and high winds. The recent impact of flooding on our roads and railway is a reminder of the need to adapt our transport network to the effects of severe weather.

Action has been taken but Transport Scotland has identified the need for climate change mitigation and adaptation as a central plank in the National Transport Strategy which sets out the vison for the next decades.

Transport Scotland’s Road Operating Companies are required to undertake a series of activities aimed at improving journey time reliability by minimising the risk of unplanned disruption to the operation of the trunk road network. The Transport Scotland Manual for the Management of the Risk of Unplanned Network Disruption provides direction to Operating Companies on managing and mitigating the effects of disruptive events, such as those caused by weather events like flooding. The manual requires Operating Companies to develop and implement disruption risk processes which are informed by the formal recording of all previous events, as they occur. This includes severe weather related events such as high winds, flooding, snow and ice.

We worked with Healthcare Improvement Scotland (HIS) to facilitate an online learning event in August 2021 to raise awareness of and build confidence amongst health and social care staff in Anticipatory Care Planning for people with neurological conditions.

This was attended by over 280 health and social care professionals working with people affected by neurological conditions, including specialist nurses and Allied Health Professionals.

The event explored how the principles of good Anticipatory Care Planning can be adapted for different neurological conditions, including for purposes much broader than end of life care.

We created a Neurological Anticipatory Care Planning webpage with HIS featuring useful tools for professionals and videos of the webinar presentations: ACP and neurological conditions - ihub | Health and social care improvement in Scotland - Anticipatory Care Planning and Neurological Conditions