- Asked by: Tim Eagle, MSP for Highlands and Islands, Scottish Conservative and Unionist Party
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Date lodged: Friday, 06 September 2024
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Current Status:
Answered by Jenni Minto on 18 September 2024
To ask the Scottish Government which NHS boards prescribe natalizumab (Tysabri) to treat multiple sclerosis (MS); how many patients in each NHS board are receiving this disease modifying therapy, and what its position is on whether it should be prescribed to appropriate patients.
Answer
I refer the member to the answer to question S6W-29676 on 18 September 2024. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers.
- Asked by: Nicola Sturgeon, MSP for Glasgow Southside, Scottish National Party
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Date lodged: Friday, 06 September 2024
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Current Status:
Answered by Gillian Martin on 18 September 2024
To ask the Scottish Government whether it will provide an update on the implementation of the Scottish Offshore Wind Energy Council’s collaborative framework charter and its development of a strategic investment model.
Answer
The Scottish Offshore Wind Energy Council (SOWEC) drove efforts to create a Collaborative Framework Charter to increase collaboration within the offshore wind industry. The primary output of that work is the Strategic Investment Model (SIM).
A strong pipeline of port infrastructure and supply chain projects has emerged through the industry-led SIM process. 38 project proposals were developed through the SIM, with a combined total capital expenditure of around £6.5 billion.
The industry-led SIM process has identified ten priority projects so far; five are port facilities, four are supply chain proposals and one is an equipment project. Further progress has been made with nineteen “progress” projects being identified through the SIM.
This approach will help deliver supply chain and port investment critical to the expansion of Scotland’s offshore wind capacity, while supporting the deployment of ScotWind.
- Asked by: Pam Gosal, MSP for West Scotland, Scottish Conservative and Unionist Party
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Date lodged: Friday, 06 September 2024
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Current Status:
Answered by Jenni Minto on 18 September 2024
To ask the Scottish Government what action it is taking to enhance the education and training of healthcare professionals on hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD).
Answer
Scotland’s Action Plan for Rare Diseases (2022) and Progress Report (August 2024) note awareness raising among healthcare professionals as the most important of our priorities, including making educational and training materials available for rare conditions. Work is underway with NHS Education for Scotland to develop the first of these, for all rare conditions, which will be video based. We will continue to explore opportunities to develop or signpost further learning resources.
- Asked by: Pam Gosal, MSP for West Scotland, Scottish Conservative and Unionist Party
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Date lodged: Friday, 06 September 2024
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Current Status:
Answered by Jenni Minto on 18 September 2024
To ask the Scottish Government what action it is taking to establish a pathway of care for individuals with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD).
Answer
Discussions around the development of care pathways for rare conditions have taken place at Scotland’s Rare Disease Implementation Board (RDIB) and with our counterparts in the UK government and other devolved nations. We will continue doing so to explore how care could be improved in this way.
- Asked by: Monica Lennon, MSP for Central Scotland, Scottish Labour
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Date lodged: Friday, 06 September 2024
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Current Status:
Answered by Jim Fairlie on 18 September 2024
To ask the Scottish Government what assessment it has made of public transport provision, particularly bus services, for accessing grassroots music venues, in light of reported concerns that a lack of access can negatively impact the sector and the wider small business economy.
Answer
The Scottish Government continues to value the important contribution music offers to Scotland’s arts and culture as well as to the wider economy and recognises the role venues play in providing opportunity and support to all levels of talent.
No specific assessment has been carried out by the Scottish Government in relation to bus and public transport access to grassroots music venues.
- Asked by: Tim Eagle, MSP for Highlands and Islands, Scottish Conservative and Unionist Party
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Date lodged: Friday, 06 September 2024
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Current Status:
Answered by Jenni Minto on 18 September 2024
To ask the Scottish Government which NHS boards prescribe alemtuzumab (Lemtrada) to treat multiple sclerosis (MS); how many patients in each NHS board are receiving this disease modifying therapy, and what its position is on whether it should be prescribed to appropriate patients.
Answer
The information requested is not held centrally by the Scottish Government or Public Health Scotland (PHS).
The decision to prescribe any medicine is for the clinician in charge of an individual’s care, having considered their clinical condition and any relevant clinical guidance.
- Asked by: Tim Eagle, MSP for Highlands and Islands, Scottish Conservative and Unionist Party
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Date lodged: Friday, 06 September 2024
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Current Status:
Answered by Jenni Minto on 18 September 2024
To ask the Scottish Government which NHS boards prescribe ponesimod (Ponvory) to treat multiple sclerosis (MS); how many patients in each NHS board are receiving this disease modifying therapy, and what its position is on whether it should be prescribed to appropriate patients.
Answer
I refer the member to the answer to question S6W-29676 on 18 September 2024. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers.
- Asked by: Nicola Sturgeon, MSP for Glasgow Southside, Scottish National Party
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Date lodged: Friday, 06 September 2024
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Current Status:
Answered by Gillian Martin on 18 September 2024
To ask the Scottish Government whether it will list the (a) nature and (b) value of each of the supply chain projects being progressed through the strategic investment model developed by the Scottish Offshore Wind Energy Council and its partners.
Answer
32 of the 38 projects progressed through the industry-led Strategic Investment Model have consented to being published and a list is available online at: Strategic Investment Model Stage 2 projects announced | Offshore Wind Scotland
Ten priority projects have been identified through the industry-led SIM process: five are port facilities, four are supply chain proposals and one is an equipment project.
A list of SIM priority projects is available online at: Full SIM Stage 2 List published | Offshore Wind Scotland.
The prospectuses and the details within them belong to the individual project proponents, however taken together the total capital expenditure of SIM projects is around £6.5 billion.
- Asked by: Pam Gosal, MSP for West Scotland, Scottish Conservative and Unionist Party
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Date lodged: Friday, 06 September 2024
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Current Status:
Answered by Jenni Minto on 18 September 2024
To ask the Scottish Government, regarding hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD), what discussions it has had with healthcare providers regarding (a) the development of and (b) equipping patients with high-quality self-management tools and resources early in their diagnostic journey, to encourage agency and independence in managing their condition.
Answer
The Progress Report on Scotland’s Action Plan for Rare Disease (August 2024) noted the discussions taken forward with NHS Scotland regarding the implementation of Future Care Planning, shared decision making and the Right Decision Service. These are all useful tools that can be used by people with a rare condition to encourage agency in making the most of consultations, and assist healthcare professionals in knowing what matters most to the person involved. We will continue to promote the use of these tools and any others for people living with a rare condition.
- Asked by: Pam Gosal, MSP for West Scotland, Scottish Conservative and Unionist Party
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Date lodged: Friday, 06 September 2024
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Current Status:
Answered by Jenni Minto on 18 September 2024
To ask the Scottish Government what action it is taking to create a coordinated approach for the treatment and care of people with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD).
Answer
Scotland’s Action Plan for Rare Diseases (2022) set out actions to improve co-ordination of care for rare conditions. Our recent Progress Report (August 2024) noted progress including Future Care Planning, shared decision making and the Right Decision Service, all of which we will continue to promote as useful tools to improve the co-ordination of care.