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I recognise that endometriosis is a painful and long-term condition, which may result in young people being absent from school for a prolonged period. As acknowledged in our national guidance on attendance, ‘Included, Engaged and Involved Part 1,’ there are links between poor attendance and attainment. It is therefore important that education authorities provide appropriate support to meet the educational needs of children or young people where endometriosis is impacting on their attendance.

Teachers are not medical professionals and therefore cannot be expected to have a detailed knowledge of all medical conditions that might affect children and young people. Training requirements should instead be planned for and driven by the individual needs of children and young people in the schools in the area. Similarly, it would not be possible for our guidance to provide detailed information for every medical condition which might cause a healthcare need in schools. For this reason our guidance on ‘Supporting children and young people with healthcare needs in schools’ does not make reference to specific health conditions such as endometriosis. If a child and young person is diagnosed with a longer term condition or develops healthcare support needs, it is normally the role of parents/carers to notify the school that they require the school's input to support their child's needs. Our guidance recommends that if a young person were to be diagnosed with any health condition which might affect their schooling, they and their parent or carer should seek a meeting with the school at the earliest opportunity to discuss their potential additional support needs. This will enable appropriate information about their healthcare needs, including impacts associated medication to be shared and enable the consideration of an individualised healthcare plan.

Where endometriosis results in a young person being absent from school for a prolonged period, the Education (Scotland) Act 1980 requires that education authorities make special arrangements for pupils to receive education elsewhere than at an educational establishment. Alternative arrangements for education will depend upon the young person’s individual circumstances; however it could be provided, for example, at home or in a hospital setting.

Income replacement benefits such as Employment and Support Allowance and Universal Credit, which provide financial support to people of working age who are unable to work due to illness, are fully reserved to the UK Government. However our Adult Disability Payment provides financial support to recognise the additional costs of living with a disability or long-term health condition.

We recognise the importance of ensuring that everyone understands what a normal period is. We have developed a range of resources that anyone can access to learn more about periods, period symptoms and conditions like endometriosis, PCOS and PMS. More information can be found in the Women’s Health Plan 2021 - 2024 Final Report.

Additionally, in March 2023 we delivered an engagement campaign in partnership with Young Scot to increase young people’s awareness of endometriosis. The campaign is aimed at those aged 11 to 25 in Scotland, including boys and young men. The campaign includes information about endometriosis symptoms, provides information about available support and provides information on how to support a friend in the process of diagnosis or who may have endometriosis.

Menstrual health and wellbeing education is a key part of relationships, sexual health and parenthood (RSHP) education. RSHP education is an integral part of the health and wellbeing area of the Scottish curriculum, Curriculum for Excellence.

An online RSHP teaching resource, (www.rshp.scot) was published in 2019 and provides age and stage appropriate learning activities on RSHP education for use in all education settings and is aligned to Curriculum for Excellence. This resource includes learning activities on menstruation from second level (P5 to P7), with endometriosis introduced at third/fourth level (S1 to S3).

The Women's Health Plan Implementation Programme Board was established to oversee and drive the delivery of the Plan. The Board brought together a range of organisations, including COSLA and Trade Union representation, to ensure that the actions within the Plan are implemented effectively and in partnership, with continued input and influence from women themselves.

The Boards stood down with the close of the first phase of the Plan. Updated governance will be developed alongside the second phase, to be published in 2025.

In NHS Scotland, a national menopause and menstrual health policy was published in October 2023, to seek to better support employees and their line managers.

NHS Education for Scotland (NES) has launched an e-learning module on menstrual health available on Turas Learnand in particular is aimed at those working in primary care. The school nursing workforce and school counsellors can also access this training as required.

The Health and Social Care Alliance Scotland (the ALLIANCE) has continued to support the Women’s Health Plan through their dedicated lived experience programme. This has included the development of the conversation café toolkit, available for anyone to use, to encourage information sharing and peer support on areas of women’s health including menstrual health and endometriosis.

More information can be found in the ALLIANCE Final Report on Women’s Health Plan.

Menstrual health and wellbeing education is a key part of relationships, sexual health and parenthood (RSHP) education. RSHP education is an integral part of the health and wellbeing area of the Scottish curriculum, Curriculum for Excellence.

An online RSHP teaching resource, (www.rshp.scot) was published in 2019 and provides age and stage appropriate learning activities on RSHP education for use in all education settings and is aligned to Curriculum for Excellence. This resource includes learning activities on menstruation from second level (P5 to P7), with endometriosis introduced at third/fourth level (S1 to S3).

The figures below relate to Endometriosis research funding directly awarded following a competitive independent review process either through Chief Scientist Office’s (CSO) project funding committees, or fellowship funding panels.

This includes the 2022 Scottish Government collaboration with Wellbeing of Women on a £250,000 research call. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

Most awards are multi-year. The figures below relate to the year in which the funding was committed rather than a breakdown by year of the spend profile for individual projects or fellowships

2007 0

2008 0

2009 0

2010 0

2011 0

2012 £110,198

2013 0

2014 0

2015 £27,639

2016 0

2017 0

2018 £162,651

2019 £30,000

2020 0

2021 0

2022 £394,510

2023 £349,999

2024 £623,028

Full details of CSO’s direct research funding awards are available from the CSO website Funded Research – Chief Scientist Office

The Scottish Government provides baseline funding to NHS Boards, which Boards use to best meet the healthcare needs of their resident population. Funding is not ring-fenced for the treatment of endometriosis. It is not therefore possible to identify funding allocated specifically for endometriosis.

Through the Women’s Health Plan, a range of funding has been provided for resources and research related to improving endometriosis care.

The Scottish Government collaborated with Wellbeing of Women on a £250,000 research call in 2022. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

The Chief Scientist Office announced funding of £299,509 for the 30 month ENDOCAN project in January 2023, led by researchers at The University of Edinburgh. Through a large scale UK-wide trial, the research will investigate whether a cannabinoid can reduce endometriosis-associated pain.

The Scottish Government also provided £24,000 of funding in August 2023 to Endometriosis UK to deliver a project creating new resources to support people with endometriosis.

The Scottish Government collaborated with Wellbeing of Women on a £250,000 research call in April 2022. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

The research will be funded over 3 years with the research findings expected to be disseminated in December 2025.

In January 2023 the Chief Scientist Office announced funding of £299,509 for the 30 month ENDOCAN project, led by researchers at The University of Edinburgh. Through a large scale UK-wide trial, the research will investigate whether a cannabinoid can reduce endometriosis-associated pain.

Recruitment for the study is due to start in August 2025 in NHS Lothian and NHS Grampian. More information can be found on the research being undertaken by The University of Edinburgh can be found on their website.