To ask the Scottish Executive what action it will take to promote awareness of haemochromatosis.
The GP curriculum includes genetics in primary care, such as recessive single gene disorders e.g. haemochromatosis and haemoglobinopathies (thalassaemia). Doctors who are training to be GPs need to demonstrate their knowledge and skills in this area and show that they are competent to manage the primary contact with patients and deal with unselected problems. GPs are also supported by health boards, post graduate deaneries, NHS Education for Scotland and others to undertake continuing professional development to acquire up-to-date knowledge and skills to address the needs of their patients. Scottish Government Officials have offered to attend the next meeting of the Haemochromatosis Society in Scotland to discuss raising awareness of the condition''s symptoms and providing patients with self help advice.
The Scottish Government has committed to an evidence based approach to screening and is given expert, independent advice on screening programmes by the UK National Screening Committee (UK NSC). The UK NSC sets out the criteria to assess screening programmes; the introduction of proposed new population screening programmes; the modification and withdrawal of existing programmes, and the quality and management of such programmes.
The UK NSC currently advises that a national screening programme for Haemochromatosis should not be introduced. However, this advice is currently under review. Consequently at this point we have no plans to introduce a pilot screening programme for haemochromatosis.
Information is not held centrally on the number of people who have haemochromatosis.