- Asked by: Jackie Baillie, MSP for Dumbarton, Scottish Labour
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Date lodged: Tuesday, 14 January 2025
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Current Status:
Answered by Jenni Minto on 24 January 2025
To ask the Scottish Government, further to a recent article published on Healthandcare.scot, which claimed that “Ministers say they will introduce a lung cancer screening programme in adults aged 55-74 with a history of smoking, in line with a recent recommendation from the UK National Screening Committee”, by what date the programme will commence, and whether it will include an incidental findings pathway for people diagnosed as having chronic obstructive pulmonary disease (COPD) during their CT scan.
Answer
Screening Oversight and Assurance Scotland, supported by the work of an expert advisory group and led by the Director of Screening, is currently developing a business case for implementation of targeted lung screening. This is expected by the end of this winter, and will consider the matter of incidental findings. Following receipt of the business case, the Scottish Government and delivery partners across the NHS will have greater scope to make an evidenced-based assessment of implementation timescales.
The roll-out of any screening programme is a complex undertaking, and the UK National Screening Committee acknowledged in its recommendation that there remain a number of significant issues that must be worked through before a full programme of lung screening can be implemented. This means a national screening programme is likely to take years rather than months to implement.
In the meantime, lung cancer remains a national priority. The Scottish Government has a dedicated chapter in our £114.5 million National Cancer Plan, and in December 2023 we redesigned lung cancer diagnostic services to help ensure patients receive faster access to treatment.
- Asked by: Jackie Baillie, MSP for Dumbarton, Scottish Labour
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Date lodged: Tuesday, 14 January 2025
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Current Status:
Answered by Jenni Minto on 24 January 2025
To ask the Scottish Government what recommendations it has received from the Director of Screening, NHS National Services Scotland, regarding implementing lung cancer screening as a new targeted screening programme.
Answer
I refer the member to the answer to question S6W-33241 on 24 January 2025. All answers to written parliamentary questions are available on the Parliament’s website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers
- Asked by: Jackie Baillie, MSP for Dumbarton, Scottish Labour
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Date lodged: Thursday, 16 January 2025
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Current Status:
Answered by Jenni Minto on 24 January 2025
To ask the Scottish Government for what reason it has proposed reducing the Young Patients Family Fund by £700,000 in its draft Budget 2025-26, and what its response is to reported concerns that this sets a precedent for further reductions to the support that children and young people with cancer, and their families, may need.
Answer
The Young Patients Family Fund (YPFF) is designed to support the families of all babies, children and young people from birth to age 18 who require inpatient care in Scotland, regardless of diagnosis.
The YPFF is a demand-led fund and the Scottish Government has ensured full funding against demand in each year since its launch on 26 July 2021. The 2025-26 budget has been set based on expected demand levels and the Scottish Government remains committed to provide full funding for the YPFF in 2025-26.
Other financial support is available to children and young people with a cancer diagnosis and their families for travel to hospital via the patient travel expenses reimbursement schemes. Under those schemes, patients and authorised escorts can reclaim reasonable costs of travel associated with attending a hospital appointment, in line with eligibility criteria and medical requirements.
- Asked by: Jackie Baillie, MSP for Dumbarton, Scottish Labour
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Date lodged: Thursday, 16 January 2025
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Current Status:
Answered by Jenni Minto on 24 January 2025
To ask the Scottish Government whether it plans to have a national AI system in place to support delivery of mechanical thrombectomy, and, if so, when.
Answer
To date, significant work has been undertaken to develop robust criteria for a national AI solution to assist with identifying patients who may benefit from a thrombectomy.
A tendering process has commenced and the suitability and affordability of AI solutions will determine whether Scottish Government proceeds with procurement.
- Asked by: Jackie Baillie, MSP for Dumbarton, Scottish Labour
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Date lodged: Wednesday, 15 January 2025
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Current Status:
Answered by Jenni Minto on 24 January 2025
To ask the Scottish Government which neurological conditions it has invested in through framework funding during the period covered by the Neurological Care and Support Framework for Action 2020–2025.
Answer
The largest proportion of funding has been awarded to projects that improve services for all or more than one neurological condition, including services for carers. Direct investment was also made to projects for the following specific conditions:
- Acquired Brain Injury
- Cerebral Palsy
- Epilepsy
- Functional Neurological Disorder (FND)
- Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
- Migraine
- Multiple Sclerosis (MS)
- Parkinson’s Disease
- Progressive Supranuclear Palsy (PSP)
- Psychogenic Non-Epileptic Seizures
- Spina bifida/ hydrocephalus
A full list of projects funded through the Neurological Framework can be found here.
- Asked by: Jackie Baillie, MSP for Dumbarton, Scottish Labour
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Date lodged: Wednesday, 15 January 2025
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Current Status:
Answered by Jenni Minto on 24 January 2025
To ask the Scottish Government whether it has identified the next priorities for the improvement of neurological care and support; if so, what these priorities are; what funding it will put towards achieving them, and over what time period.
Answer
Priorities for the Scottish Government are:
- national implementation of the Scottish Epilepsy Register,
- further adoption of successful approaches to improving services through the neurological conditions network,
- continued improvements in provision of ‘social support’ and psychological services for people with neurological conditions,
- continued development and adoption of condition specific care pathways,
- continued development and adoption of approaches to workforce planning and training for nursing, pharmacy, neuropsychology allied health professionals, and neurophysiology.
This work will be considered as part of the development of the Long Term Conditions Strategy due to be published later this year. Any required funding will be considered during the 2025-26 budget deliberations.
- Asked by: Jackie Baillie, MSP for Dumbarton, Scottish Labour
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Date lodged: Wednesday, 15 January 2025
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Current Status:
Answered by Jenni Minto on 24 January 2025
To ask the Scottish Government what its position is on whether any so-called postcode lottery in neurological care and support provision has been fully addressed through the actions set out in the document, Neurological Care and Support in Scotland: A Framework for Action 2020 – 2025.
Answer
The aims contained in the document Neurological Care and Support in Scotland: A Framework for Action 2020 – 2025 are applicable to healthcare delivery across Scotland. Through this we have supported a number of national initiatives to improve care and reduce variation, including:
- Self-evaluation by all NHS boards against the General Standards for Neurological Care and Support 2019. Development of national care pathways for headache and Functional Neurological Disorder, with care pathways for further conditions in development
- Agreement of a Business Case and funding to adopt the Scottish Epilepsy Register across Scotland, improving the safety and quality of care for people with epilepsy
- Development of a neurology nurse specialist competency framework
- Formation of collaborative improvement networks which include NHS boards, Health and Social Care Partnerships, third sector organisations and people with lived experience to encourage consistent adoption of the successful approaches funded through the Framework
- Development, by third sector partners, of a toolkit for the consistent commissioning of social support for people with epilepsy
- Improved provision of public information on individual neurological conditions through the development and/or revision of 23 NHS inform webpages
- Through national charities, development of nationally-accessible sources of self-management support for people with MS, spina bifida hydrocephalus, progressive supranuclear palsy, cerebral palsy and non-epileptic seizures
- Re-development of the internationally recognised neurosymptoms.org web resource to support people with Functional Neurological Disorder
- Dissemination of nationally-accessible clinician education resource for ME/CFS
- Asked by: Jackie Baillie, MSP for Dumbarton, Scottish Labour
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Date lodged: Wednesday, 15 January 2025
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Current Status:
Answered by Jenni Minto on 24 January 2025
To ask the Scottish Government how much it has invested in clinical research into (a) dementia, (b) neurodegenerative conditions, (c) non-neurodegenerative conditions and (d) other neurological conditions in each of the last five years.
Answer
Within the Scottish Government, funding for Health and Care Research comes under the policy remit of the Chief Scientist Office (CSO)
CSO directly funds research through its research project and fellowship schemes. These are open to applications from across the clinical spectrum. All applications go through the same independent expert review process to enable funding decisions to be made
For multi-year projects and fellowships, the funding figure is allocated to the year corresponding to the start date and is the total amount committed to the project or fellowship
The 4 categories listed have been interpreted as follows:
Dementia - category including Alzheimer's; Frontotemporal Lobe Dementia; Lewy Body Dementia
2024-25 | 28,115 |
2023-24 | 299,999 |
2022-23 | 592,437 |
2021-22 | 260,978 |
2020-21 | 20,000 |
Neurodegenerative Conditions - category including MND/ALS; Multiple Sclerosis, Parkinson's
2024-25 | 132,368 |
2023-24 | 356,955 |
2022-23 | |
2021-22 | 1,947,038 |
2020-21 | 73,325 |
Non-neurodegenerative conditions - category including Epilepsy; Migraine; Seizures
2024-25 | |
2023-24 | 501,704 |
2022-23 | |
2021-22 | 379,814 |
2020-21 | |
Other neurological conditions - category including Ischaemic and Haemorrhagic Stroke; Cerebral Small Vessel Disease; Acquired Brain Injury
2024-25 | 550,919 |
2023-24 | 300,000 |
2022-23 | 856,698 |
2021-22 | 762,439 |
2020-21 | 78,744 |
In addition to directly funding research projects and fellowships, CSO also funds the NHS Research Scotland infrastructure that supports the running of Clinical Trials in the NHS here. This infrastructure includes topic-specific research networks which act as the interface between the research community, the NHS and patients themselves, facilitating the set up, delivery and completion of clinical studies across Scotland within their specific clinical areas
The research networks in Dementia/Neuroprogressive Conditions; Stroke; and Pain support the delivery of clinical studies across one or more of the above categories.
Details of CSO funding for these 3 research networks is provided in the table below:
Network / Specialty | FY 2020-21 | FY 2021-22 | FY 2022-23 | FY 2023-24 | FY 2024-25 | Total per area |
Neuroprogressive & Dementia | £506,000 | £677,000 | £777,000 | £829,000 | £855,000 | £3,644,000 |
Stroke | £616,000 | £641,000 | £689,000 | £734,000 | £757,000 | £3,437,000 |
NRS Pain | £14,404 | £14,821 | £18,000 | £28,500 | £30,000 | £105,725 |
Total per Financial Year | £1,136,404 | £1,332,821 | £1,484,000 | £1,591,500 | £1,642,000 | £7,186,725 |
- Asked by: Jackie Baillie, MSP for Dumbarton, Scottish Labour
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Date lodged: Wednesday, 15 January 2025
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Current Status:
Answered by Jenni Minto on 24 January 2025
To ask the Scottish Government what assessment it has made of the priorities from the Neurological Care and Support Framework for Action 2020-2025 that will not have been reached by the end of the framework period.
Answer
A final report on the Neurological Care and Support in Scotland: A Framework for Action 2020-2025 will be published by the Scottish Government when the Framework reaches the end of its agreed lifespan. An assessment of future priorities for neurological conditions will be included.
- Asked by: Jackie Baillie, MSP for Dumbarton, Scottish Labour
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Date lodged: Wednesday, 15 January 2025
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Current Status:
Answered by Jenni Minto on 24 January 2025
To ask the Scottish Government how many people with a terminal neurological condition have met the criteria for requiring palliative care in each year since 2021-22, broken down by how many received specialist palliative care.
Answer
This information is not held centrally by either Scottish Government or Public Health Scotland (PHS).