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PE2038: Commission suitable NHS services for people with hypermobile Ehlers-Danlos syndrome and hyper mobility spectrum disorders

Petition Summary

Calling on the Scottish Parliament to urge the Scottish Government to commission suitable NHS services for those with hypermobile EDS (hEDS) and hypermobility spectrum disorders (HSD), and to consult with patients on their design and delivery.

Petitioner: The Ehlers-Danlos Support UK

Status: Under consideration

Date published: 24 July 2023

Click here for the full petition

SPICe Briefing (153KB, pdf) posted 21 August 2023

Committee Meetings

4 October 2023: The Committee agreed to write to the Scottish Government and the NHS National Services Division.

Official Report of Meeting 04 October 2023

09 October 2024: The Committee agreed to write to the Scottish Government and NHS Wales.

Official Report of Meeting 09 October 2024

24 September 2025: The Committee took evidence from—

Neil Gray, Cabinet Secretary for Health and Social Care
Alan Morrison, Deputy Director Health Infrastructure & Sustainability, Scottish Government
Douglas McLaren, Deputy Chief Operating Officer, Scottish Government

The Committee took evidence on thematic healthcare issues in Scotland that have been raised in multiple petitions.

Official Report of Meeting 24 September 2025

Update from Cabinet Secretary for Health and Social Care, 30 October 2025