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The Young Patients Family Fund (YPFF) is designed to support the families of all babies, children and young people from birth to age 18 who require inpatient care in Scotland, regardless of diagnosis.

The YPFF is a demand-led fund and the Scottish Government has ensured full funding against demand in each year since its launch on 26 July 2021. The 2025-26 budget has been set based on expected demand levels and the Scottish Government remains committed to provide full funding for the YPFF in 2025-26.

Other financial support is available to children and young people with a cancer diagnosis and their families for travel to hospital via the patient travel expenses reimbursement schemes. Under those schemes, patients and authorised escorts can reclaim reasonable costs of travel associated with attending a hospital appointment, in line with eligibility criteria and medical requirements.

The largest proportion of funding has been awarded to projects that improve services for all or more than one neurological condition, including services for carers. Direct investment was also made to projects for the following specific conditions:

• Acquired Brain Injury
• Cerebral Palsy
• Epilepsy
• Functional Neurological Disorder (FND)
• Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
• Migraine
• Multiple Sclerosis (MS)
• Parkinson’s Disease
• Progressive Supranuclear Palsy (PSP)
• Psychogenic Non-Epileptic Seizures
• Spina bifida/ hydrocephalus

A full list of projects funded through the Neurological Framework can be found here.

Priorities for the Scottish Government are:

• national implementation of the Scottish Epilepsy Register,
• further adoption of successful approaches to improving services through the neurological conditions network,
• continued improvements in provision of ‘social support’ and psychological services for people with neurological conditions,
• continued development and adoption of condition specific care pathways,
• continued development and adoption of approaches to workforce planning and training for nursing, pharmacy, neuropsychology allied health professionals, and neurophysiology.

This work will be considered as part of the development of the Long Term Conditions Strategy due to be published later this year. Any required funding will be considered during the 2025-26 budget deliberations.

There are no plans to expand eligibility of The Young Patients Family Fund (YPFF) at this time.

In addition to support available under the YPFF, financial support for travel to hospital is available via the patient travel expenses reimbursement schemes. Under those schemes, patients and authorised escorts can reclaim reasonable costs of travel associated with attending a hospital appointment, in line with eligibility criteria and medical requirements.

All Health Boards in Scotland receiving baselined funding from the Scottish Government toward their neurology services. As part of Planned Care funding, the Scottish Government has also invested £217,000 in total towards improving waiting times in NHS Tayside and NHS Greater Glasgow and Clyde.

Through the Neurological Framework, the Scottish Government has given direct investment to numerous territorial Health Boards to undertake projects focusing on neurological care, in line with the Framework’s commitments. Health Boards that have received direct investment are:

• NHS Ayrshire and Arran
• NHS Forth Valley
• NHS Grampian
• NHS Greater Glasgow and Clyde
• NHS Lanarkshire
• NHS Lothian
• NHS Orkney
• NHS Tayside

Third sector organisations have also been awarded funding to work in partnership with a number of statutory organisations to better integrate services, including NHS Greater Glasgow and Clyde and NHS Fife. The Migraine Trust has worked in partnership with seven NHS boards to improve treatment for migraine in community pharmacy.

A full list of projects funded through the Neurological Framework can be found here.

The aims contained in the document Neurological Care and Support in Scotland: A Framework for Action 2020 – 2025 are applicable to healthcare delivery across Scotland. Through this we have supported a number of national initiatives to improve care and reduce variation, including:

• Self-evaluation by all NHS boards against the General Standards for Neurological Care and Support 2019. Development of national care pathways for headache and Functional Neurological Disorder, with care pathways for further conditions in development
• Agreement of a Business Case and funding to adopt the Scottish Epilepsy Register across Scotland, improving the safety and quality of care for people with epilepsy
• Development of a neurology nurse specialist competency framework
• Formation of collaborative improvement networks which include NHS boards, Health and Social Care Partnerships, third sector organisations and people with lived experience to encourage consistent adoption of the successful approaches funded through the Framework
• Development, by third sector partners, of a toolkit for the consistent commissioning of social support for people with epilepsy
• Improved provision of public information on individual neurological conditions through the development and/or revision of 23 NHS inform webpages
• Through national charities, development of nationally-accessible sources of self-management support for people with MS, spina bifida hydrocephalus, progressive supranuclear palsy, cerebral palsy and non-epileptic seizures
• Re-development of the internationally recognised neurosymptoms.org web resource to support people with Functional Neurological Disorder
• Dissemination of nationally-accessible clinician education resource for ME/CFS

A final report on the Neurological Care and Support in Scotland: A Framework for Action 2020-2025 will be published by the Scottish Government when the Framework reaches the end of its agreed lifespan. An assessment of future priorities for neurological conditions will be included.

Within the Scottish Government, funding for Health and Care Research comes under the policy remit of the Chief Scientist Office (CSO)

CSO directly funds research through its research project and fellowship schemes. These are open to applications from across the clinical spectrum. All applications go through the same independent expert review process to enable funding decisions to be made

For multi-year projects and fellowships, the funding figure is allocated to the year corresponding to the start date and is the total amount committed to the project or fellowship

The 4 categories listed have been interpreted as follows:

Dementia - category including Alzheimer's; Frontotemporal Lobe Dementia; Lewy Body Dementia

This information is not held centrally by either Scottish Government or Public Health Scotland (PHS).

To date, significant work has been undertaken to develop robust criteria for a national AI solution to assist with identifying patients who may benefit from a thrombectomy.

A tendering process has commenced and the suitability and affordability of AI solutions will determine whether Scottish Government proceeds with procurement.