Question reference: S6W-26411
- Date lodged: 3 April 2024
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Current status: Answered by Jenni Minto on 22 April 2024
Question
To ask the Scottish Government whether it plans to create a working group with relevant stakeholders on the implementation of the NICE guidance on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Answer
The Scottish Government fully supports the National Institute for Health and Care Excellence (NICE) guideline on diagnosing and managing ME/CFS. We wrote to all Scottish health boards following its publication to raise awareness of the guidance and encourage its implementation.
We are committed to improving care for people with ME/CFS and want to facilitate constructive communication between patients and clinicians so that all parties are engaged in finding a way forward.
We are currently reviewing options to foster consensus around the applicability and implementation of the NICE guideline on ME/CFS, and how this relates to other existing clinical guidance in Scotland. Input from people with lived experience of ME/CFS will be integral to any agreed option.