Question reference: S3W-02264
- Date lodged: 19 July 2007
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Current status: Answered by Nicola Sturgeon on 6 August 2007
Question
To ask the Scottish Executive what the (a) incidence per 100,000 and (b) number of cases of cystic fibrosis was in Scotland in the most recent year for which figures are available and what comparative information it has for (i) the United Kingdom, (ii) each OECD nation and (iii) each EU member state.
Answer
The informationrequested is not held centrally.
However,background information relating to this request is available from a number ofsources.
Dundee University:
The UK CysticFibrosis Database is developed and maintained from Dundee University. Information about the database isavailable from:
Personnel at Dundee University are also driving the collation ofcomparable figures for EU member states. The latest available information ondata collated for the member states is available from:
Personnel at Dundee University have contributed to Chapter 2 of therecently published 3rd edition of Cystic Fibrosis (Authors: D Geddes, MHodson, A Bush). This chapter presents an overview of estimated birthprevalence for Scotland, UKand a number of EU member states and OECD nations. In summary:
Around 20-25babies are born with Cystic fibrosis in Scotland each year, which equates to abirth prevalence rate of just under 1 in 2,000 live births.
For the UnitedKingdom, the number of babies born each year is approximately ten times theScotland figure at 200-250. The birth prevalence rate in the UK as a whole isestimated to be slightly lower than that observed in Scotland at around 1 in2,400 live births.
Cystic fibrosisis a genetic condition and birth prevalence rates vary between ethnic groupswithin countries. For example, in the United States the birth prevalenceamongst the white population is estimated to be approximately 1 in 3,400 livebirths, compared with a birth prevalence for the non-white population of around1 in 12,000 live births.
InformationServices Division of the NHS (ISD Scotland):
It is likely thatpatients with Cystic fibrosis will have contact with healthcare services in anumber of healthcare settings including, GP practices or as inpatients or daycases in an acute, general hospital.
Acute HospitalDischarge Information:
The incidence andnumber of patients discharged from acute, general hospitals in Scotland with a diagnosis of Cystic fibrosis is shown in the followingtable.
Incidence,Incidence Rate and Number of Cases of Cystic Fibrosis in Patients Discharged fromAcute, General Hospitals in Scotland, Scottish Residents1 - YearEnding 31st March 2006
| Incidence2 with diagnosis3 of cystic fibrosis | 71 |
| Incidence rate per 100,000 population4 | 1.39 |
| Cases5 with diagnosis of cystic fibrosis | 484 |
Source:ISD Scotland linked SMR01 database.
Notes:
1.Excludesresidents out with Scotland, of no fixed abode or unknown.
2.Incidence isdefined as a patient’s first ever discharge with the specified diagnosisscreened backwards through the patient’s discharge history for 10 years (1996).
3. Up to six diagnoses (oneprincipal and up to five secondary) are recorded on SRM01. All six diagnoseshave been used to identify cystic fibrosis employing the InternationalClassification of Diseases, 10th revision (ICD10) code E84.
4.Based on GRO(S) mid year population estimate for Scotland, 2005.
5. Patients discharged with diagnosisof cystic fibrosis (includes incident cases).
General PracticeInformation.
The incidence ofGP contacts with diagnosis of cystic fibrosis is not available centrallybecause numbers are too low to calculate meaningful, national estimates basedupon a sample of general practices from practice team information data.