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Seòmar agus comataidhean

Official Report: search what was said in Parliament

The Official Report is a written record of public meetings of the Parliament and committees.  

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Dates of parliamentary sessions
  1. Session 1: 12 May 1999 to 31 March 2003
  2. Session 2: 7 May 2003 to 2 April 2007
  3. Session 3: 9 May 2007 to 22 March 2011
  4. Session 4: 11 May 2011 to 23 March 2016
  5. Session 5: 12 May 2016 to 5 May 2021
  6. Current session: 12 May 2021 to 17 August 2025
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Displaying 775 contributions

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COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

I will broaden out that question to you, Euan. We have always heard that Scotland is fantastic at gathering data—that we have a phenomenal ability to do that. However, given the practicalities of informing our GPs at the front line about what to look for in Covid and of deploying resources to help patients at the front line, our ability to deploy that data is not good. That is what we are hearing just now—that that element is not good.

Where are we with that, and what do we need to do to ensure that our healthcare professionals are properly informed about the issues around long Covid? We have even heard that some of them still do not believe in long Covid—they feel that there is a mental health issue around long Covid. The reality is that long Covid exists. How are we going to get to a point at which all that gathered data is available to our healthcare professionals so that they can deploy the resources?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

Do we have an information technology system in Scotland that allows for the proper deployment and sharing of data across the whole system?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

Good morning. My interest in health is around the gathering and deployment of data. Do we have a system that allows for the effective deployment of data? We gather data, but do we have a system that, in practice, allows that data to be crunched and deployed, such that effectiveness is measured as we consider how the data ends up being used in the treatment of patients? To date, we have heard from clinicians and from sufferers of long Covid that the investigation and the data are not allowing for effective treatment on the front line.

I put that to you first, Professor Robertson, as a statistician and a non-clinician. Is that right?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

That leads me to another question. As I have said, the quality of research in Scotland is world renowned, but, at the end of the day, it is about how you deploy that effectively on the ground. Can any of the other witnesses—I am looking at you, Dr Scott—help me understand how that data is being deployed to help patients, because that is what we are trying to do?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

I was interested to hear you say that you have access to data on 5.1 million Scots. That is a significant pool of data from which you can draw. However, for that to be useful, people would first have to suspect or know that they have long Covid and they would then have to access a GP to be diagnosed, or at least be signposted somewhere by their GP to be diagnosed. They would then have to be able to identify a treatment.

You gave the figure of 5.1 million people, but the research that we have done and the evidence that we have taken suggest that there is a problem, especially in more deprived areas, to do with people who potentially have long Covid coming forward.

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 2 March 2023

Brian Whittle

Good morning, panel. Thank you for coming and sharing your experiences.

When we speak to long Covid sufferers, the theme that comes out is a long journey to get to a diagnosis and then to get through treatment. The diversity of symptoms for long Covid seems to require a process of elimination. They get electrocardiograms, MRIs and blood tests. All the other conditions that put the NHS under pressure have not gone away.

It strikes me that one of the keys to streamlining and making efficient the diagnosis and treatment of long Covid is how we gather and use data. Are we gathering data? Do we have an information technology system that allows the deployment of that data?

I am looking at your responses, Dr Heightman, so I will start with you.

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 2 March 2023

Brian Whittle

I will reverse a wee bit and ask you to clarify one point that you made. Are you suggesting that the ability for a GP to point to a long Covid service actually dictates where long Covid diagnoses are likely to spring up?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 2 March 2023

Brian Whittle

The outcomes from the development of long Covid clinics are not only about the ability to diagnose and treat. Does that mean that long Covid clinics are a conduit for gathering that important data?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 2 March 2023

Brian Whittle

I will conclude my questions by expanding on the collection of data. I will put the question to Claire Jones first. What ability do you have to share and collect data—not only from around the UK, but internationally, given that this is a global pandemic?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 2 March 2023

Brian Whittle

We are trying to get to a position where we are as efficient as we possibly can be in the diagnosis and treatment of long Covid. Presumably, the more data that we can pull from the global population, the more that would aid you in that.