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Official Report: search what was said in Parliament

The Official Report is a written record of public meetings of the Parliament and committees.  

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Dates of parliamentary sessions
  1. Session 1: 12 May 1999 to 31 March 2003
  2. Session 2: 7 May 2003 to 2 April 2007
  3. Session 3: 9 May 2007 to 22 March 2011
  4. Session 4: 11 May 2011 to 23 March 2016
  5. Session 5: 12 May 2016 to 4 May 2021
  6. Current session: 13 May 2021 to 14 September 2025
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Displaying 1296 contributions

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Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Last week it came up that somebody might have a terminal illness but also have what might be considered to be a mental ill-health issue; the bill talks about the person having a “mental disorder”. However, somebody can have depression then get a terminal illness, too. That is the sort of thing that, down the line, should be addressed in further guidance—the bill supports the development of guidance—so that the assessment of adequate “capacity” can take into account that some people will have co-existing conditions.

Health, Social Care and Sport Committee

Subordinate Legislation

Meeting date: 21 January 2025

Emma Harper

I will pick up on Joe FitzPatrick’s point about the impact of the new US President on products that will be marketed in or brought to this country. The US Food and Drug Administration has the “Food Defect Levels Handbook”, which sets out acceptable levels of defects in food. That allows certain levels of insect parts, mould, mites, dust and even—dare I say it?—rat poo.

We do not have anything like that in Europe or in the UK. I am assuming that the Food Standards Agency and Food Standards Scotland will be horizon scanning for products that might be brought to the market from the USA for instance. I have concerns about the acceptable level of defects in the products that are coming from America.

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

I am a type 1 diabetic, and I do not consider myself terminal.

Health, Social Care and Sport Committee

Subordinate Legislation

Meeting date: 21 January 2025

Emma Harper

You mentioned feed. Food Standards Scotland looks not only at products that are for human consumption but at products for animals. We know that some products are added to the food of ruminants for emissions reduction. One of those products was mentioned in the chamber last week, because there seems to be a perception—perhaps because of fake news on the internet—that some products are not safe. However, they are rigorously tested before the products are even added to feed for our dairy cows, beef cattle or sheep.

I seek reassurance that my understanding is correct—that the products are rigorously tested and safe and that, therefore, people should not believe what they read on the internet.

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Again, we are talking about autonomy and choice. Dialysis is not nice to go through. I have worked with patients who have had multiple issues. If someone is suffering, work should be done with their care provider, their clinician and their family to establish what autonomy they should be afforded.

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

My understanding is that the UK bill refers to conditions that are untreatable, rather than ones that people cannot recover from, which is the language that the Scottish bill uses. Does that make a difference?

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Some people can refuse treatment, but they might be treatable. For example, they could receive chemotherapy to extend their life for another six weeks, but they might say, “I don’t want to go through that.” I am trying to explore the difference in definition between untreatable and unrecoverable.

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Okay. I think that that is covered.

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Dr Wright, I am processing the information that you gave about whether people with chronic obstructive pulmonary disease or heart disease might be considered terminal, as might people with diabetes who struggle because they are in dialysis three times a week or have neuropathic pain or something like that. Are you suggesting that the definition of what constitutes a terminal illness diagnosis is too broad, because it might lead to persons with diabetes, COPD and heart disease being eligible?

Health, Social Care and Sport Committee

Subordinate Legislation

Meeting date: 21 January 2025

Emma Harper

I want to highlight the case of a diet pill that was sold in America and then came to Britain. It has now been relabelled as a poison. That is down to the work that the Food Standards Agency is doing. The diet pill 2,4-dinitrophenol—DNP—is a poison, and it was reclassified in legislation. That is part of the work that you do to highlight certain products, which you might then act to ban or to reclassify, which is what happened in that case. Is that correct?