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Seòmar agus comataidhean

Question ref. S6W-08218
Asked by: Martin Whitfield, South Scotland, Scottish Labour
Date lodged: 26 April 2022


To ask the Scottish Government when it will publish its Rare Disease Action Plan.

Current status: Answered by Maree Todd on 10 May 2022


As part of our recovery from the Covid-19 pandemic, we are reassessing all our priorities to take a systematic, person-centred approach to planning and delivering health and social care services for the people of Scotland.

As we go through a process of realignment, we are taking time to ensure all our strategies are designed around the people using and delivering health and social care services and working together to improve health outcomes. This is even more pertinent for those living with a rare disease.While we expected to publish our Action Plan in the spring, the Rare Disease Action Plan will now be published once this work is complete to ensure maximum impact for the people who need it. This will result in a stronger, interlinked action plan that has a real impact for people with a rare disease.

We will continue to work with Scotland’s Rare Disease Implementation Board and other key partners to progress work that will improve the lives of people in Scotland living with rare diseases.