National Awareness Month for Osteogenesis Imperfecta
- Submitted by: Joe FitzPatrick, Dundee City West, Scottish National Party.
- Date lodged: Tuesday, 29 March 2022
- Motion reference: S6M-03802
- Current status: Achieved cross-party support
That the Parliament recognises the Brittle Bone Society's campaign to mark the month of May as National Awareness Month for Osteogenesis Imperfecta; understands that osteogenesis imperfecta is a genetic bone disorder characterised by fragile bones that break easily; further understands that it is a rare condition affecting approximately one in every 15,000, which equates to around 5,000 individuals in the UK; acknowledges that the Brittle Bone Society is the sole organisation in the UK that supports people born with osteogenesis imperfecta; notes that the Brittle Bone Society was established in Dundee in 1968 by Dr Margaret Grant MBE, and is still based in Dundee; notes the support for the mission of the Brittle Bone Society to ensure that people living with osteogenesis imperfecta are understood and respected, and congratulates the Brittle Bone Society on continuing to champion the needs of people living with osteogenesis imperfecta.
Supported by:
Karen Adam, Clare Adamson, Jeremy Balfour, Miles Briggs, Ariane Burgess, Alexander Burnett, Stephanie Callaghan, Maggie Chapman, Foysol Choudhury, Graeme Dey, Jackie Dunbar, Pam Duncan-Glancy, Annabelle Ewing, Russell Findlay, Kenneth Gibson, Pam Gosal, Emma Harper, Bill Kidd, Rona Mackay, Ruth Maguire, Gillian Martin, John Mason, Stuart McMillan, Audrey Nicoll, Mark Ruskell, Paul Sweeney, David Torrance, Tess White