Current status: Answered by Jenni Minto on 17 June 2025
To ask the Scottish Government how it will ensure the full implementation of the National Institute for Health and Care Excellence (NICE) guidelines on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) across all NHS boards, and whether this implementation will supersede the updated 2023 Scottish Good Practice Statement on ME/CFS.
The Scottish Government withdrew the Scottish Good Practice Statement (SGPS) on 28 May 2025, leaving NICE Guideline NG206 as the default clinical guidance on ME/CFS. This will help provide clarity to NHS Boards as providers of care for people in their area with ME/CFS.
Work is ongoing to determine how the additional £4.5 million announced in the 2025-26 budget to deliver new specialist support for ME/CFS, long COVID and other similar conditions will be allocated to NHS boards, what conditions it will cover and the services it will prioritise. We want this money to have maximum impact and are working closely and carefully with boards across Scotland to allocate it as quickly and effectively as possible.